Health Advocates Weigh Data, Equity in Obesity Targets

Health workers review the Consortium to Lower Obesity in Chicago Children policy agenda on Sept. 16, 2015.

Health workers review Consortium to Lower Obesity in Chicago Children policy agenda.

Childhood obesity is a stubborn problem to reverse in communities starved for cash. In a new five-year plan, Chicago health advocates put a priority on targeting funds and tracking results.

“We are not seeing significant improvement in disparities,” dietitian and food consultant Tracy A. Fox told the Consortium to Lower Obesity in Chicago Children. The group outlined its policy agenda at a Sept. 16 meeting.

A decades-long rise in obesity rates has leveled off at 17 percent, according to Centers for Disease Control and Prevention data. “It’s a plateau at an insanely high rate,” Fox said.

The overall trend also disguises rising obesity rates among minorities. “For African-Americans in particular we are seeing pretty significant increases. So I think we have our work cut out for us,” she said.

“As you discuss your policy agenda for this coalition, I would think about always viewing what you’re doing through the lens of how this would impact disparities,” Fox advised. “If you’re going into a middle- or upper- income school and you’re making significant changes, that’s really cool and that’s really nice. But are you then widening the gap between what’s happening in the city with African American and Latino kids and white middle- and upper-income kids?”

The group is refocusing priorities as both city and state lawmakers consider one of its initiatives, a tax on sugary beverages.

“There’s an argument to be made, if you’re just looking to lower consumption, then where that money goes is maybe not as important as just raising the price of soda,” said executive director Adam Becker. Still, the group is pushing for proceeds to benefit public health instead of sweetening general revenues.

“The feasibility is not really a question anymore,” Becker said. “It’s more the political will.”

The City Council health committee in September considered a penny-an-ounce tax. But its chair, Ald. George Cardenas (12th Ward) has not committed to advancing the plan. A state tax on distributors gained Chicago and suburban sponsors but has not advanced in the Legislature.

“It shows momentum,” said Elissa Bassler, chief executive of the Illinois Public Health Institute. “It’s being seriously considered as a source of revenue to improve health and invest those revenues into health initiatives.”

As new policies gain traction, data analysis has emerged as a priority. “Just because a bill got signed into an act or an ordinance passed doesn’t necessarily mean the things you intended to have happen are indeed happening,” Becker said. “A lot of the real hard work comes when you have to then monitor where things are going.”

Obesity and overweight in kindergarten, 6th and 9th grades, 2012-13 (Chicago Public Schools)

Obesity and overweight pupils in kindergarten, 6th and 9th grades, 2012-13 (Chicago Public Schools)

For example, Illinois requires schools to take body-mass measurements, but the consortium wants the data tracked to identify areas in need. In the latest review of Chicago Public Schools data, roughly half of students were overweight or obese in 11 of Chicago’s 77 community areas.

The coalition of public-health advocates wants to build on recent legislative victories. Childcare centers in Illinois now must meet standards on physical activity, nutrition, screen time and breastfeeding. The group seeks to extend the licensing requirements to child-care family homes.

Less sugar and fat are now required in subsidized school food programs, along with more vegetables, fruits, whole grains, lean protein and low-fat dairy. The consortium wants to maintain the higher standards and expand a federal summer nutrition program, which reaches only 15 percent of eligible children in Illinois.

“We work a lot in school breakfast,” said Bob Dolgan, executive director of the Greater Chicago Food Depository. “And it’s surprising even in low-income school districts how few administrators think about the fact that they have children coming to school without a meal and not eating until lunchtime. How can they possibly concentrate and excel in school without a meal?”

The group also pledges to spread novel ideas such as doubled food stamp benefits at farmers’ markets, a loan pool to build grocery stores in food deserts, and a “baby friendly” designation for hospitals that support breastfeeding.

And it advocates plans to encourage recreation and make streets safer. “In the first several iterations of the transportation bill, there’s been a big shift of more money for walking and bicycling,” said Melody Geracy, deputy executive director of the Active Transportation Alliance. “It is still a microscopic grain of sand in terms of the overall transportation budget. Still, it’s a target” for cost-cutters, Geracy said.

The group’s five-year plan retools an agenda set at a 2010 conference of local advocates. Policy-focused members shared a draft this spring with the group’s executive committee. Becker said national advisors provided details on policy specifics. Lurie Children’s Hospital, where the consortium is based, checked for conflicts with its own positions.

“You all as a city are probably farther ahead than a lot of even big urban cities in terms of really trying to come together with a unified agenda,” Fox told the group.

The policy document says political support is “particularly threatened” for federal health supports such as Racial and Ethnic Approaches to Community Health. The CDC program pays for health screening in Chicago minority communities.

She advised local advocates to talk up their victories. “The more evidence base you have, the better,” she noted, but success stories from the front lines are more likely to engage lawmakers.

Local policy strategists suggested that closing gaps in outcomes will require wider access to preventive care. “Reducing disparities isn’t the same as creating equity,” said Joseph Harrington, regional health officer for the Illinois Department of Public Health.

Chicago Hospitals Win $8.75 Million to Launch Data Network

A data-sharing network of 10 Chicago hospitals could make medical research more reliable and less expensive. It’s a big-data project that keeps patients records locked up, but lets researchers search for trends.

An $8.75 million grant will fund the three-year launch of the Chicago Area Patient-Centered Outcomes Research Network. Awarded July 21, the contract taps money set aside in the Affordable Care Act for medical research.

Terry Mazany

Terry Mazany, The Chicago Community Trust

“What’s unique about CAPriCORN is that it brings together these 10 institutions that historically have been competitors, or at least disinterested in each other,” says Terry Mazany, chief executive of The Chicago Community Trust and the project’s principal investigator. (The trust is also a Smart Chicago funder.)

“This brings them together in a very formal organization across the entire region,” Mazany says, “with a patient population of upwards of 5 million patients potentially available for research, and in particular a patient population that is very diverse.”

The Chicago network and clinical networks in 10 other regions will allow health advocates to monitor even rare conditions and prove how well current treatments work.

Their first test will be Duke University’s nationwide study to prove whether taking children’s aspirin to prevent a heart attack is as effective as an adult dose, which carries potential side effects. Researchers in Chicago and five other cities will study 20,000 at-risk heart patients, a large sample size that allows fine-tuned analysis.

Richard Kennedy, Loyola University Chicago

Richard Kennedy, Loyola University Chicago

“They contacted us and said, you’ve got the numbers that we need, would you be able to participate?” says Richard Kennedy, vice provost for research and graduate studies at the Loyola University Chicago health sciences division in Maywood. “We had a significant number of patients that would fit nicely in the cohort.” Kennedy and Frances Weaver are Loyola’s head researchers for the data network.

Hospitals now are collaborating on how to conduct the trial and manage the data. Other studies will track obese patients after bariatric surgery and children on antibiotics to treat immune disorders. Mazany sees Chicago hospitals as active participants. “When the national level is looking at need and expertise in an area, we have a far broader and deeper bench than any of the other systems,” he says. “That’s a real strength.”

In a $7 million startup phase, CAPriCORN built out a system to connect the medical centers without exposing patient information. The next phase explores its real-world uses, as well as a funding model that puts patients’ interests first.

The aspirin study “is going to answer a question of great clinical concern,” Kennedy says, “but the importance is truly we’re testing the infrastructure we’ve been building for the past 18 months. All right, you’ve put together what seems to be a very impressive informatics system with all the security we would want for our patients. Now let’s see if it works.”

Privacy starts with keeping personal identifiers off the network. Researchers query data in a small, separate access layer, with names and addresses reduced to a cryptographic hash. “We’re currently having it validated by a security firm that’s one of the top in the region to make sure it protects subjects,” Kennedy says.

A novel algorithm links the anonymous patients’ records across all hospitals, giving public health researchers a more reliable count of how common their condition is and where to find hot spots. “You have the ability to look for rare diseases and aggregate an adequate sample size to do statistically significant studies,” Mazany says.

“There’s a next step in some of the research designs,” he adds. Instead of just counting how many patients share a condition, studies that pass an ethics review will reach out to them.

“Let’s say you’re looking at exploring treatments for sickle cell, and you’re specifically looking at teenagers as a population,” he explains. “Then you can do a query to identify the total population and where they’re distributed among institutions.”

Hospitals then can ask patients to join clinical trials that will log treatment details. “It still protects patient privacy but is able to more efficiently identify candidates for the research study,” Mazany says.

Researchers see the network as low-cost way to recruit trial subjects. “Instead of tens of thousands of dollars per participant, then it’s dollars per participant,” Mazany says. “You leverage the efficiency of large data systems so each researcher doesn’t independently have to enroll institutions.

“What makes this in someone’s interest? Lowering the cost of research, speeding up research, creating greater effectiveness. Those three standards are part of a health system that’s learning and evolving rapidly.”

The focus likely will improve data handling as well. “One interesting byproduct could be if there is unevenness across institutions that may become apparent,” Mazany says.

Research on the network will be subject to more thorough advance review. “It’s patient centered,” Loyola’s Kennedy says. “It includes a lot of patient input into the design of the study, the importance of the study to the subjects, the patients, the community.”

Like other clinical trials, research must pass muster with an institutional review board. Feedback also comes from a doctor-patient advisory panel that includes advocates for treating asthma, arthritis and other diseases.

“There’s also a pastor’s group on the South Side that’s very active,” Mazany says. The advisory group “totals about 30 people — it’s a pretty large group.”

The extra review should put important research on a fast track, and prime doctors and patients to follow its recommendations.

“Oftentimes research truly answers medical questions for the people that ran it, yet the results don’t get distributed and implemented as well as we would like,” Kennedy says. “We hope that by engaging the community and the patients – and the clinicians who are taking care of those patients – the results will be implemented much more quickly, because they will be designed in part by input from these subjects.”

The aspirin study also will look into the benefits of mobile health devices. A University of California-San Francisco team will give some participants apps to send reminders and record activity. In Chicago, Kennedy says investigators are considering how they might manage frequent readings from blood sugar monitors in a diabetes trial.

The network is “more open and accessible for that type of data collection,” Mazany says. “Who knows where that will lead as far as the efficacy of the research?”

Hospitals will have to consider a long-term funding model after federal funding runs out in 2018. “We’ve been contacted by an industry sponsor, who would very much like to think that there was a Chicago network they could access without working individually with the 10 institutions,” Kennedy says “That’s going to take some time to create that kind of trust.”

Mazany wants to make sure patient advocates can propose research on the network, but they’ll need to be thoroughly vetted. “They’ll come up with their own queries, but there won’t be an open-data hack night,” he says. “There are just too many privacy and security concerns with these types of data. But in a sense, the hack night would be communities and patients identifying questions that could interrogate data sets through the mechanism of the queries.”

The network has no data portal, but researchers will be encouraged to find ways to show their work outside of medical journals. That may include websites such as Smart Chicago’s Chicago Health Atlas, a past collaborator with hospital networks.

“The Health Atlas is an example of a good partner both on the front end of identifying important trends in the data that can help to frame priorities, and then on the back end as a distribution system for communications outward,” Mazany says. “I look for the Health Atlas to be a very valuable partner, but none of this has been formalized.”

The big-data approach also might spread beyond hospitals. “I don’t know how that’s going to play out,” Mazany says. The network already includes community health centers that store electronic health records centrally. He envisions opening up the network to more health providers.

“That line of thinking is an exciting frontier,” Mazany says. “Right now everybody is up to their necks in alligators draining the swamp. The analogy with Walt Disney envisioning Disney World and Florida in the midst of the swamp I think is appropriate here. We have a vision and are laying the infrastructure to have arise a Magic Kingdom.”

Parks Take Active Health Role at Obesity Conference

LaSalle II school

Children play at LaSalle II school, 1148 W. Honore.

Health workers treating obesity in children are looking beyond what they see in clinics, to what’s at play in Chicago parks.

“Can you imagine camping in Chicago within 15 minutes of downtown?” said Zhanna Yemakov, Chicago Park District conservation manager. At the quarterly meeting of the Consortium to Lower Obesity in Chicago Children, Yemakov outlined park plans for the roughly 1,000 acres of Southeast Side brownfields now among park holdings.

Other speakers addressed the city’s playgrounds, plazas and pocket parks. “Our focus is what we call a socio-ecological approach, where we look at all the factors that influence childhood obesity at all levels,” said Adam Becker, CLOCC executive director, after the June 9 conference. The focus extends beyond individual cases to family, community and the broader social and political environment.

Chicago Health Atlas

Chicago Health Atlas: Diabetes hospitalization per 10,000 residents, 2011

A 2013 city study finds Chicago Public Schools students have above-average obesity rates – 48.6 percent of sixth-graders were overweight or obese. In 8 of the city’s 77 community areas, fewer than one-third of students fell outside the healthy range; in 15 communities, it was about half.

Overweight and obesity do carry long-term risks, according to the Centers for Disease Control and Prevention. In children and adolescents, they include cardiovascular disease and elevated blood sugar levels that can lead to diabetes within a decade.

Obese children also are more likely to become obese adults, with higher rates of heart disease, type 2 diabetes, stroke, cancers and osteoarthritis. The Chicago Health Atlas charts variations by neighborhood in several such adult conditions, including diabetes, high blood pressure, and breast and colorectal cancers.

“If you’re focusing on one you’re not going to solve the problem,” Becker said. “We try to measure impact as best as we can, but with obesity it’s just so complicated. You can’t just say A equals B. The lines are very indirect.”

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